You win some, you lose some

physical-therapy-clip-artPT is really difficult, but I must stick with it.  My body will function better for it.  A new dangerous habit I’m forming is needing to have  coffee or green tea in order to have a little energy – either to make it through the exercises or to make it through the rest of the day. This article talks about caffeine myths, but since Im experiencing some of these “myths” I’m not sure.
UPDATE: I practiced the stairs today! And completed all of my exercises. I kicked MS in the butt today…then it proceeded to try to get me back by snatching all of my balance for the next hour. Continue reading

My Miracle – IVSM Day 4

My head is pounding right now, and I haven’t even had my infusion as yet. I’m just exhausted.


Since October, I’ve lost about 20 lbs.  Not complaining,  I had the weight to lose but, when you’re losing weight but not trying to, and you’ve basically been sitting for a few months something else could be happening.  The nurse was concerned I’m having muscle waste, but I really haven’t been eating very well.   I guess my Avocado toast diet though easy to make, isn’t exactly nutritious.

3 more days to go. My course is longer this year. I haven’t been able to eat today, but I am going to try my best to make a Potassium Oatmeal pudding.  Sweet potatoes, Banana, oats and spices. It’s gluten free and will replace some of the potassium I’m losing. It tastes better than it sounds. 🙂

IVSM can be so difficult, but I might be able to get out of the house by the end of this, so I’ll persevere, my sister has been a rockstar in helping me. Thank you Lord for your help. Thank you for my miracle.

April Again

For the past ten years, when it has been March – May, my MS symptoms are “kicked up a notch”.  I can barely walk despite humidity percentage below 60. I’m so tired and getting through the day has become downright difficult even though I have to stay in one place most of the day… perhaps some of this  angst is because I must stay in one place most of the day.

Starting to wonder – just because of the consistent Spring/Fall timing of my flares – if allergens have anything to do with this trigger.  Hmm.

If you remember the last two years, my insurance has  fought tooth and nail to avoid paying for my treatment and that is where we are right now.  Last year, unbeknownst to me, my dr got extra funding to cover a great deal of the cost – wow.

Thank you Lord.

Please work another miracle for me!



*So I moved on to the series after Yada Yada prayer group and they decided to switch from Barbara Rosenblatt mid series – HUGE mistake.  Rosenblatt did not read the rest of the Yada Yada series, and I had wondered why, but I’d rather her not read as opposed to them trying to hire someone else mid stride!